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http://m.washingtonpost.com/national/health-science/when-flexible-becomes-too-flexible/2014/03/07/4d669e30-69c5-11e3-ae56-22de072140a2_story.html
Wow -- reading this was a punch to the sternum.
It's sometimes hard to read about other people's journeys with EDS, especially if they got earlier interventions that have helped them significantly, rather than spending decades without knowing that all of their "disparate" conditions shared the same underlying cause, as I did. (Glad that they're getting help, though. Just wish that someone had referred me to Dr. H while I was still living in MD -- I might be better-off now.)
#eds #ehlersdanlos #ehlersdanlossyndrome #hypermobility #raredisease
(including hashtags for ease of reposting)
Wow -- reading this was a punch to the sternum.
It's sometimes hard to read about other people's journeys with EDS, especially if they got earlier interventions that have helped them significantly, rather than spending decades without knowing that all of their "disparate" conditions shared the same underlying cause, as I did. (Glad that they're getting help, though. Just wish that someone had referred me to Dr. H while I was still living in MD -- I might be better-off now.)
#eds #ehlersdanlos #ehlersdanlossyndrome #hypermobility #raredisease
(including hashtags for ease of reposting)
