Jan. 3rd, 2016


Jan. 3rd, 2016 08:34 pm
ashbet: (Lacrimosa 2)
[livejournal.com profile] xvsharrax was kind enough to set this up -- things are going to be very uncertain and scary for a while, and I won't turn down any help offered.

I am beyond grateful for how supportive everyone has been. I genuinely have no words to express how touched I am.

Thank you <3

Direct link: https://www.gofundme.com/mghdkdtw

For anyone sharing/reading this who doesn't know me directly (I'll make it a public post) -- my daughter and I have a genetic disorder, Ehlers-Danlos Syndrome, which is painful, degenerative, and disabling.

My partner of seven years left me today.

He was laid off in October, and we are unable to afford COBRA, so we're without insurance as of January 1.

We have high prescription expenses and normally need to see specialists regularly. I was in the middle of a cardiac workup to try to get some difficult heart symptoms under control, but I won't be able to see the cardiologist again until we have insurance, or I'm able to find a housemate to assist with expenses.

My daughter and I are both on Medicare, so we can't buy insurance through the ACA exchange. Private "Medicare Part D" insurance doesn't cover the majority of our drug costs.

We had been covered through my partner's employer-provided insurance, and if he is able to find work, he is going to try to cover us again, even though we are no longer together. In the meanwhile, we're going to have high medical expenses and no real way to pay for them.

Please signal-boost, and thank you to anyone who can share this or can donate. I am incredibly thankful for the emotional support that my friends have provided, and I hope that we can get through this tenuous and frightening time with a little bit of help.

Thank you, so very much.

ETA: Here are links to FB and Tumblr, if you'd like to share this elsewhere than LJ:



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